Mom update

It’s been awhile since I’ve mentioned anything about my mother, so I thought i’d do an update post. It’s taken several months to work through all her doctors to get a handle on her full health status, but now we think we have most everything figured out.

We already knew mom has diabetes and asthma. As we got her meds organized, it became obvious she also has high blood pressure and high cholesterol. She’s on a lot of meds, including two different types of injectible insulin, an oral med for diabetes, an oral med for asthma, and a maintenance inhaler. Just keeping them all organized and filled is a chore. I looked into mail order prescription services, but her insurance didn’t cover the one that really intrigued me (Pillpack.com), and mom said she prefers to get her meds from the pharmacy anyway.

Sister and I were worried about mom’s inability to take her diabetes medications regularly, and her primary care doc thought that had a lot to do with her forgetfulness. Finding a way to get her to take her meds properly was imperative for us.

We also recognized that mom was stuck at home with only her two little dogs for company. Her days consisted of getting up and fixing breakfast for her and stepfather, then spending the time after he left for work mostly watching TV and dozing in a chair. She would do some light housework and usually get dinner ready during that time, but she wasn’t getting any real physical or mental stimulation. She was also skipping or missing meals, which wasn’t good for her blood sugar. Mom lives in a rural area and there are no close neighbors for her to interact with, either.

After a bit of research into senior services and activities in her area we found that there was a day program at a private senior living facility within 30 minutes of her home. We also discovered that the township would pick her up and drop her off there for a small fee.

It took quite a bit of negotiation to get mom to agree to visit the place and try the activities. We had to get a lot of forms completed with health details and doctor permissions for activities, too. We finally managed to get her going to the day program in July. She goes two to three times a week and is loving it. There are chair exercise classes, games, puzzles, and cooking classes. The staff make sure she takes her insulin shot and she gets lunch and a snack, so her blood sugar is now more under control.

Stepfather covers the cost of the transportation, and sister and I split the cost of the day program since they can’t afford it. Each month it costs me between $250 and $350, and I can make that fit in my budget. Every week when I talk to her she tells me how much she enjoys going there and thanks me for paying for it.

Tomorrow sister is taking mom to the neurologist to discuss the results of mom’s most recent EEG. The first visit to this doc resulted in a diagnosis of dementia and a prescription that mom had to stop after a few days because it made her sick. We’re not sure what this visit will bring, but hopefully there will be something else she can try for the dementia symptoms.

The last few times I’ve talked to my mom she has mentioned that she would love to come out to visit me. I’m considering that progress.

The distance I’ve had from her has helped me feel less stressed about my mom, but I recognize that sister has taken on a lot of the burden of taking her to doctors and organized her health care. I had a pretty transparent dream about this a few weeks ago, in fact. In my dream, I was living in a beautiful suite of rooms in a big house. I left my suite to go find my sister since I knew she was living in this big house with me. When I found her room it was small, cramped, and dingy. It really didn’t take too much thought to realize that even subconsciously I know sister has the more rotten deal here. :-/

Mother’s Day

It would be wrong to say I hate Mother’s Day, but it’s a day that I struggle with nearly every year. My relationship with my mom has never been close, and I feel resentful that I am forced to confront this every year and try to meet some societal standard for showing mom how grateful I am that she gave birth to me and raised me.

I didn’t plan to write about Mother’s Day or my mom, but after I got up this morning and followed my usual routine of catching up on my online life while having coffee, I ran across Donna Freedman’s blog post about her relationship with her mom and her regrets. I’m not feeling regret like Donna and my mom is still around, but it is a deeply moving piece to read because it is not the usual hearts and flowers stuff that is written about Mother’s Day. It is real and raw and evocative of how complex family relationships usually are.

I’m not as good at writing as Donna, but I really just wanted to get this out today. Before reading Donna’s post, I called my mom to wish her happy Mother’s Day. Even though I live less than a two-hour drive from here, that was all I could manage this year.

My current difficulties facing mom started a couple of months ago when she called me and left a vague voicemail message saying she was out-of-town, but would I please call her back. When I finally got her on the line, she told me she had fallen the day before while with her husband and stepdaughter visiting some family, and that her leg and foot were swollen, bruised, and that it hurt to walk. I asked her if she had gone to a doctor. No, she said, her husband had refused to take her. She then said was alone in the hotel room at that time, which is the only reason she felt she could call because she didn’t want to upset my stepfather telling me this.

Now, I was 22 and living independently when my mother re-married, so I did not spend any time being supported by my stepfather. I have gotten to know him pretty well over the past 20+ years, though, and he is not a monster. I called mom’s bluff and told her that if she told her husband that she really wanted to see a doctor, he would take her. Or, if she didn’t feel like bothering him with her problem, she could call a cab to take her to urgent care or an ambulance to take her to the ER. I can’t know exactly how the conversation went after she fell, but she did say that there was some talk of calling an ambulance and/or take her to the hospital, but at the time she didn’t feel it was necessary.

Yet, here I was on the phone with her talking about this because she had called me to tell me about her pain. Right. I’m over 700 miles away from her location at the time of her phone call, and personally unable to do anything to help her, yet she calls me to tell me how much she hurts and how she can’t walk and must simply lay in the hotel room all by herself while her husband is swimming with his daughter and grandchildren.

The thing is, this type of behavior is normal for my mom. She creates situations of high drama where she will get the maximum amount of attention. This goes beyond the standard claims of people who say their mother is a martyr, making great sacrifices for the family and making sure everyone knows that.

Growing up, I learned to distance myself as much as possible from my mom — both physically and emotionally — because scary things happened when she got into high drama mode. I was spared the full brunt of her antics for many years because of my ability to hide in plain sight, and because my older sister got the most of her craziness. But by the time I reached high school age, my older sister wasn’t around as much and I was starting to get pulled into her antics.

There was the time I was miserable and sulky about something, and my mother — who was driving me to or from somewhere — said she’d had enough of life, too, and she would just drive us off the highway and into the quarry we were currently crossing over. This was her way of making me shut up about whatever was bothering me and causing me to be difficult. There was no doubt in my mind that she would do it, either, because I knew she was mentally unstable. I had to beg and cry and practically lunge for the steering wheel myself to make her stop feinting towards the edge of the road.

Then there was the time she offered me a handful of pills to take my own life, as she swallowed a bunch herself. I was alone with her in the house because my father and sister were out-of-state at a family party. I had been sent home in disgrace with my mother for doing something stupid, and was grounded and confined to the house. I didn’t think it could get any worse for me, being confined to the house with just my mom for company, but mom showed me that it certainly could get worse. I called 911 after mom swallowed the pills and told them that we needed an ambulance, but my mother calmly phoned them back and said she was sorry she had caught her daughter making a prank call. I ran out of the house to the neighbor’s next door, told them what had happened, and begged to use their phone. I’ll never forget the neighbor lady saying to her husband, “Oh, not again.”

As it ended up, my mother refused to get into the ambulance that showed up. She insisted that she’d rather have her daughter take her to urgent care where our insurance would cover her treatment and made the ambulance leave. Never mind that my father and sister had the family car and the only car available was a used Buick my dad had recently purchased for use when I finally got my driver’s license. Which is how I — a frightened, unlicensed, 15-year old driver of an unlicensed car — ended up taking my mother to get treated for over-dosing on prescription meds. We actually never made it to the urgent care clinic. Along the way, she grumbled about how upset my father would be to receive the ambulance bill, and then insisted I pull over in an out of the way place where she would make herself vomit. She said she knew they would stick a tube down her throat to pump her stomach and she didn’t want to go through that again.

Again. That word came up a lot when I was growing up. Oh, mom was in a mood again.

Once I got a driver’s license, I used it to be away from home as much as possible. There was high school and a job and doing things with friends. My sister finished high school and moved out to college. A year later my father left and filed for divorce. I was alone in the house with my mom. Again. (I was also very angry with my father for leaving me with this crazy person. And that’s exactly what I told him.)

Mom tried to manipulate me in her dramatic way one more time that stands out in my memory. She woke me up in the wee hours one night crying and carrying on that she was going to kill herself. I rolled over and told her to just go ahead and do it, but to let me go back to sleep because I had school and work the next day. Around this time mom was finally seeing a therapist, a woman who asked her to bring me in one day so to meet with her so she could talk to me about how I was dealing with the separation and imminent divorce of my parents. I told the therapist about this encounter where my mother woke me up to threaten suicide. Again. I thought the therapist would have some harsh words for me, but she didn’t. She told me it was fine that I had done that.

I know mom had a difficult childhood. She has readily talked of the emotional abuse she received at home and the physical abuse she witnessed. Of how she left home at 16, eloping with my father so she could escape all that. Despite the fact that I only knew my maternal grandfather to be a loving and caring man, I’m sure she wasn’t making up stories. I realize it is possible for people to have many sides to their personalities and to have different behaviors with different people. And that often people change over time.

I recognize that my mom did her best to raise me, and that she and my father actually did a pretty good job. Both my sister and I are strong, capable, and independent women. We have successful careers and are good members of our community. Yet my sister married alcoholics, twice. She is active in two 12-step programs, which have helped her immensely over the years. And I feel like an emotional cripple.

At some point growing up, I began to think of my mother as a vampire who wanted to suck out my emotions and my life. I want so much to feel loved, but I am wary of giving too much of myself. After suffering from panic attacks over 15 years ago, I sought therapy and have done very well. I have enough emotional strength and intelligence to take care of myself, but when there is another person to take into consideration I am shaky. I’m terribly afraid of feeling subsumed. Again. It’s easier to hold myself back.

The situation with my mom calling me from out-of-town to get my attention about her fall just sapped me. It broke me down. I didn’t get angry or start crying, but I did ask her: Why was she telling me this? What did she expect me to do? Besides telling her that she needed to communicate clearly to her husband that she wanted to see a doctor, I looked up the closest urgent care centers to her hotel and gave her the phone numbers and street addresses. Then I got off the phone with her as soon as I could.

I messaged my sister, with whom I’m finally starting to have a good relationship. And she gave me the comfort that she could. “What do you expect from mom? She’s a crazy person. You know that. Don’t let her get to you.” Indeed.

So, really the best I could muster for today was to call my mom and wish her happy Mother’s Day. And to tell her that I love her. Because I do love her. Goddess help me, but I do.